Wiersma Family Blog

WIERSMA FAMILY BLOG
A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....


Sunday, August 23, 2009

Trach for Max

This week has been challenging for Mark and I. Thursday we came to the decision that Max will need a trach. We had thought that we would avoid it and just spend a couple more weeks in the NICU letting his lungs develop, however we recently found that his lung issue was creating a heart issue as well. This decision has been easy and difficult at the same time. Easy because we know it is the best thing for Max, and difficult because it isn't what we wanted for him.
Wesley is doing quite well. He is on "home flow" nasal canula. He has also had the opportunity to take a bottle. He wasn't quite sure about it, he gagged and coughed a lot. Thankfully it is something we can continuosly work on. Even if he doesn't get it right away he could come home with gavage feedings. Mark and I will just have to learn how to put in a feeding tube. There is a chance he might come home in a month or so.
Please pray for Max's little body going through surgery again. For fast healing of his lungs and stopping the damage to his heart. Pray for Mark and I to be strong for our little guy. Also, that we quickly learn all the different things we will have to know as his parents.

Hopefully later tonight we will have more details about when surgery will be. And, have Mark describe exactly what the trach is and means for Max. He is MUCH better at that then I am.

2 comments:

  1. Praying for peace and strength for you guys. You are not forgotten. Know that you are apart of a HUGE family that is here for you.

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  2. Thanks for the update Kate. It is awesome to see how far the boys have come! We are praying for Max especially, but all of you as well. Hold onto God the Father's hand and let His way by your way (easier said than done, I know!). It was great seeing you again this week!

    Love, MBIKLG

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