It has been a long day. We were at the hospital from 6:30 AM to 7:00 PM. Most people that do that get paid handsomely for their time. It was not a burden to spend time with the boys, but Max was not himself and that is hard for us to see. He is like a different boy now. He breathes through a hole in his neck and gets fed through a hole in his stomach. We likely won't hear his cry again for some time either. That was one thing we really liked in a strange way because his brother makes hardly any noise and cannot really cry. It has just been an emotionally and physically draining day for us.
Here is a picture of the "upgrades" that Max got today. The trach is quite obvious. Max is a chunky boy and he is also quite puffy right now (because of the all the IV fluids), so the actual port and collar are not visible. The other big thing is the port in his stomach. It has some gauze around it right now because it is fresh, but that will go away when it heals up. The feeding tube will be connected to this port and his feeding with be pushed into his stomach. He has at least 4 other incisions from the Nissin procedure as well. This kid hardly has a square inch of skin without some sort of scar on it.