Kate and I had a chance to talk with one of the NICU doctors this afternoon about Wes and the weaning situation. He is the doctor that cancelled the weans because Wes' oxygen needs were starting to creep up a bit. He now feels that Wes is ready for a trail off CPAP. No weans, just one and done. Kate and I couldn't agree with him more. Wes' breathing has been very rhythmic and consistent and his O2 needs have been in the high 20% range. This news came as a bit of a surprise to us after the events of last week, but we are ready to move one child to CPAP and another child off...two is too many. I imagine that the boys' disdain for the CPAP is similar to a child with Colic are acid reflux. As a parent the only feeling to describe it would be "helpless." Join us in praying that maybe this will be the last Sunday Wes is on CPAP.
Another prayer request we have is for Wesley's vocal chords. Max has actually stated to cry out loud a little bit since being extubated on Wednesday. It is a weak, raspy cry, which is too be expected after being intubated for the length of time that he was. But we were reminded that Wes still doesn't really make any noise. There is always a risk of paralyzing the vocal chords when a child is intubated, particularly when they are as little and fragile as these two were. This paralysis can either be permanent or temporary. We are obviously praying for any paralysis to be temporary. We don't even know if that is why he doesn't make any noise, but given their pathway thus far in life (multiple intubations and extubations), it is the most likely scenario. An ENT doctor will scope Wes' larynx at some point, but nobody except Kate and I seem real concerned with it, so there is nothing on the schedule at this time. Pray that God will touch Wes' throat so that we can hear his sweet little voice for the first time.