Wiersma Family Blog

A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....

Wednesday, July 1, 2009

Slow but Steady

The last couple days have been quite good. Both boys are doing well with their breathing apparatus'.
Maxwell has been able to have his conventional vent setting decreased from 34 to 27 since he has been off the jet, and his INO is also slowly being lowered by one each day (starting at 10 now he is at 3). His oxygen needs have increased slightly, however, that is to be expected with all the other changes going on. He also had a doppler ultrasound done Monday on his neck. The doctors were concerned that the edema (swelling) in his head wasn't going away. The ultrasound checked his veins to ensure they weren't blocked. I am happy to say that the results came back normal and over the last couple days his head is slowly starting to get better. We might finally get to see what our son looks like!!! Tonight Max weighed 7lbs. 1 oz.
Wesley is again rocking the CPAP. He's now on a CPAP of 5 (coming down from 7). His oxygen needs have been consistently in the low 30's. He is still feisty as ever. Last night he managed to roll over from his side to his back and some how throw off the blanket that was swaddled in. Wesley's weight tonight was 6lbs. 5 oz.

Mark and I are extremely pleased with the headway the boys are making. We are trying not to get too far ahead of ourselves though. It always seems our sons take a step forward and two steps back. The boys still have some hurtles to jump over, but for today we are enjoying their progress. We are praying for more days like the last few, and hope that the boys can show the doctors how "big and strong" they really are.


  1. So glad to hear that the boys are doing well, all these steps forward continue to add up over time. This journey you are on is long and hard and we are praying for you all daily. Max and Wes surely are Big and Strong and the day will come when Max and Wes will be NICU Graduates :)

    Tina Jacobsen

  2. Mark, Kate, Max & Wes,

    Wow! All the latest pics, videos and posts have been so incredible! We haven't seen you all in a little while and haven't posted recently... but we are checking the blog daily and continue to faithfully pray! We are so excited that the boys are currently on a "slow but steady" pace and prayingprayingpraying for that to continue:)

    Jason, Mary & Bella

  3. Love these updates! So glad to hear you've all had some slow and steady days - that can be a great thing!

  4. My prayers for you and the boys continue.
    Isn't it just awesome how God takes His little ones in His hands and loves them...grows them..cares for them...and never leaves them?

    God Bless You
    God Keep You
    God Smile on You
    and..give you His peace.

    In His Grip..barb

  5. Wow, you go Wes! Rolling over!?! Next thing you know he is going to be climbing out of that thing to go see his brother.
    Glad to hear the good news, we are praying they keep it up.
    We miss you guys (all of you)!!

  6. WOW! They are making great progress! So glad to read you've gone to a parent meeting and found it helpful. Sometimes its nice to have some food and just connect with others in similar situations. God places all people in our lives for a reason. Take care of those boys! They are growing like weeds! So happy for you both and think/pray for you often! -Sue Nykamp