Wes has been doing very well too. I feel like he gets left out of these posts a lot, but it is all for good reason. They did start weaning Wes again, which has been a lot of fun for his parents!! He just loves having the CPAP off, all he wants to do is sleep. He is currently off CPAP for 3-hours, twice a day. They are also using what they call a "low flow" setup, which differs from the last time he was weaned. A number of weeks ago when they tried to get him off CPAP, he was on just oxygen through a nasal cannula at 2.5 liters of flow. This time around, he has been on a flow of about 0.1-0.2 liters, and really doing well. His blood gases have been relatively unchanged from when he was on CPAP full time just a few days ago. His breathing seems to be much better, and we have encouraged the doctors not to push him too hard because we really want this to be the beginning of the end for the CPAP apparatus. Two kids on CPAP is just too much. Trust me. Join us in praying for continued strength for Wes as well. Pray that God will give him the strength he needs to get to a place where breathing is as effortless and involuntary for him as it is for you and I.
The boys did have their sodium chloride tests yesterday to test for Cystic Fibrosis. The goal was to collect three "rings" of sweat so that they could run the test on each boy twice. They were only able to get 2 rings from Max and zero rings from Wes. Max's test came back normal. I asked when they would try to repeat the test and the best answer I got was "right before they go home." Thanks...that really helps!! And when is that going to be exactly? Sorry...back to the post. They also had another eye exam on Tuesday, and both boys eyes were still immature. This is really what we want to hear at this point. ROP is an eye disease that effects a LOT of kids born as prematurely as Max and Wes, and in mild cases may require some laser treatments and in the worst cases can lead to blindness. We have been VERY blessed to not have either boy have any signs of ROP so far. At this point, they are pretty much "out of the woods" for having ROP as I understand it. They may still need corrective vision at a very early age, but indications at this point are that they will be able to see, and that is such a great feeling for Kate and I.