Just wanted to get a short post on here asking for your prayers for Max. After all of his improvements over the last few days, things are heading the wrong direction. He was down to a pressure of 30 on Monday, and as of this morning is back up to 44 because his CO2 has been high (indicating that he needs more oxygenated air, hence the increased pressures on the vent). There does not seem to be a real clear reason why he is back tracking so quickly. They did stop his steroid treatments for a day due to high blood pressure, but that seems to have come down a bit now and they were able to give him two doses of the steroids yesterday. The steroids do cause him to retain water, and his poor little head is super puffy right now. He looks like a very miniature version of the Stay Puft Marshmallow Man. They have started him on a drug to help him pass additional fluids.
Wes continues to prove everyone wrong by staying on the CPAP and even improving a bit. His oxygen needs have come down to the 50% range when he is calm (which is not very often). The doctors have twice prepared to intubate him and put him back on the vent, but Wes has shown his mettle and they have continued to let him breath on his own. We are so proud of Wes, but so concerned for his brother. Please pray with us that God will just touch Max's lungs and get the healing process underway. May God grant Max peace and comfort as he is poked and prodded and jarred around by the jet vent. We just feel so helpless as parents as he has to endure so much for such a small little boy. I know that Max and Wes have their Grandma's courage and desire to fight, I just don't want them to have to rely on that every second of the day.