Wiersma Family Blog

A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....

Monday, May 11, 2009

Good day

The boys continue to pretty much behave themselves.  They have developed their own personalities for such little guys...all of the good traits from their father of course, and maybe some of their mother's quirky tendencies.  Wes insists on having his hands above his head (or, as I call it, playing "so big" by himself)...which is exactly where his CPAP apparatus is, so naturally he latches on to that and tends to cause a ruckus for the nurses.  His oxygen needs are still in the 40% range, but he climbs into the 50s when he gets agitated or is very awake.  One of us (usually Kate) has been able to hold him every day because he continues to be quite stable and doing well on the CPAP.  That is so awesome.  Every time we do get to hold him though, we are reminded that we cannot hold his brother Maximus.  Max is still at 38 on the jet vent and in the 50-60 range on his oxygen.  He has started to get pretty puffy again after a few days of improvement.  We are not sure  exactly sure why, and it doesn't seem that the doctors really know either.  We will continue to patiently wait and lean on God, trusting that He holds Max in His hands.

Tomorrow is kind of a big day.  The boys are going to have their eyes examined and we will have somewhat of an idea how they are developing.  Eye disease is very common amongst micro-preemies, it is called Retinopathy of Prematurity or ROP.  There are 5 stages of ROP 1 being the best, 5 being the worst.   Stage 5 is a full detachment of the retina (I think).  From what we have been told, stage 4 and 5 have very poor outlooks (blindness in some cases), stage 3 can be treated with some laser treatments, and stage 1 and 2 usually lead to potentially good vision.  These stages can improve and worsen over time, so we will try not to get do to discouraged if the reports tomorrow are not good..but we would really love a break!!  A good report would really be a plus after two heart surgeries, both boys having chronic lung disease, and Kate's Mom passing away not even two weeks ago.  We know we have so much to be thankful for...the fact that we are parents at all is a miracle from God...but our boys have so many challenges ahead of them, and I do not think that Kate or I have the capacity to handle a bad report.  But that is tomorrow, and God will give us the grace and mercy we need to handle what tomorrow will bring.


  1. We will be praying for good eye exams tommorow for both Max and Wes. They will be in good hands with Dr. Droste, he is an amazing eye doc and will take good care of them. Praying for you and your boys daily. Keep leaning on God and trusting in him.

    Tina Jacobsen

  2. I just read an article in the latest issue of People magazine (the one with Kirstie Alley on the cover) about several young adults around the age of 20 who were born as micro-preemies and are doing very well! I was very encouraged to read that. You may want to check it out if you're interested! (Oh! I just found a website post that had the pages scanned so you can read them... this will be easier.)


    I'll be praying for Wes & Max... especially regarding to their eye exam tomorrow.

  3. We are praying that God will give you the strength you need for today, and the next day, and the next. We love you all! Tell Max and Wes that their cousins pray for them everyday!


  4. I also read the article in People Magazine and was so encouraged to read about those young adults who at one point were the same size (or in some cases smaller) than Max and Wes when they were born!

    Elliot & I continue to keep all of you in our thoughts and prayers! I will keep saying prayers for you throughout the day today for a good report on the eye exam!

    You guys are an amazing inspiration!
    In Him,
    Jodi (Vork) Essenburg

  5. We are praying for you guys today!!

  6. Mark, Kate, Max & Wes,

    Yea! We love to see posts titled Good Day!!! We are so proud of your little men and all that they have accomplished in these last few weeks!

    We are thinking about the continued testing that is going on and praying for strength and grace for you today. We know that God has great plans for the Wiersma Family!

    For I know the plans I have for you, declares the Lord, plans to prosper you and not to harm you, plans to give you hope and a future. - Jeremiah 29:11

    We continue to faithfully pray,
    Jason, Mary & Bella