Max has completed his 5th found of chemo. I can't even describe to you how amazing this kid is. I ask him if he is a Big Brave Boy and he just smiles and says "Yup"!
We have a marathon day set up in Ann Arbor Tuesday. Appointments from 8am until 4 or 5. He will get a liver ultrasound, heart echo, pulmonology appt, cardiology appt, and a couple meetings with the liver transplant surgeons. After all that they will determine what the next step is and we will most likely be on the transplant list. HOPEFULLY we won't have to go the transplant route but the docs want the option ready if he ends up needing it.
So many thoughts constantly running through my head...so hard to put into words. I am still attempting to be positive but it is hard to manage all the chaos at times.
"Max are you a BIG BRAVE BOY"?
That will help me get through tonight. =)