Well we finally have a diagnosis. After 6 long days we are finally getting some where. He has metapneumovirus. I guess that its like/similar to RSV. So we are in the holding pattern. It is now just up to his lungs to heal. There is not a ton that they can give him to "heal" it. He will stay on his his steriod, zithromax (med) and his nebulizers. We are still on the 8th floor (PICU) but I hoping to be back on a peds floor in the next couple days.
Wes is still really struggling at home. Very out of it and sleeping in small increments. His cough is better and today was the first day without a fever. But it is till gonna be a while til I can go home or have Mark up here.