Wiersma Family Blog

A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....

Friday, April 27, 2012

April 27- Second post

This evening we were moved to PICU. So far NOTHING has changed; NO settings, NO venting, NO meds, NO nebs (nebulizers), No NOTHING. I am more than frustrated at this point. Not sure why in the world they made us move. Not sure why they haven't changed anything. Not sure why no one seems to be listening to me.

I asked the nurse if I could go up to the roof and scream. She just laughed and said that if she knew how to get up there she would have done it more than once in her nursing career. That was one of the brief smiles today. The other was when my son who I thought was sleeping called out to me and said "kiss Mama kiss." Thank Heaven for that little Man."


  1. Praying hard and sending lots of hugs your way!!

    Love you,

  2. Lord, we know you're in all the details. Continue to hold this sweet family, heal these miracle men, and bring them back together in your perfect time! Many prayers are being lifted up for you guys, Kate!! Love you!

  3. Prayers and Hugs!!

    Tina Jacobsen