This evening we were moved to PICU. So far NOTHING has changed; NO settings, NO venting, NO meds, NO nebs (nebulizers), No NOTHING. I am more than frustrated at this point. Not sure why in the world they made us move. Not sure why they haven't changed anything. Not sure why no one seems to be listening to me.
I asked the nurse if I could go up to the roof and scream. She just laughed and said that if she knew how to get up there she would have done it more than once in her nursing career. That was one of the brief smiles today. The other was when my son who I thought was sleeping called out to me and said "kiss Mama kiss." Thank Heaven for that little Man."