Wiersma Family Blog

WIERSMA FAMILY BLOG
A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....


Wednesday, January 27, 2010

Wow

Sorry for the long gap between posts...life is a little crazy right now! the boys are both doing well for the most part. Max has adjusted well to home life and is getting on a good schedule that somewhat agrees with Wes' schedule. We had our first pulmonary appointment with Max last week, and we were not real excited about it because we had a bit of an altercation with the doctor in the NICU before Max went home (she had a lot to do with him not coming home before Christmas). I am happy to report, the doctor was very professional and was impressed with how Max is doing. She really thought he would be working hard and struggling with the adjustment to home still, but said that he looks and sounds like he has been home for 6-months. That was good to hear! She even said that if he is still doing as well as he is now, that at the next appointment we can talk about making some ventilator changes!! Max has not really gained a lot of weight since he came home and is still about 18 1/2 pounds. Wes is plugging along and seems to have adjusted to getting a little less attention than he is accustomed to. He is still retching regularly and has started spitting up regularly as well. This has been a very difficult issue for us as we cannot seem to get any clear direction from any of our 6,000 doctors. The latest news is that we are being referred to a neurologist. I am not exactly sure what the thought process behind that is, but what's another doctor appointment? I had a pulmonary appointment with Wes on Monday that went well. We are now down to just 3 breathing treatments a day (from 4), which means I no longer have to get up a 5:00 AM...I get to sleep until 5:20 AM now...which is very exciting!!

5 comments:

  1. Hey, congrats on the extra sleep. Every minute counts!!! Glad to hear that the boys are doing so well. Praying that you all stay healthy and strong throughout the rest of the winter months.

    ReplyDelete
  2. Congrats on the good news and progress all around!! We think of you all often!!

    Love,
    Marie and Chad

    ReplyDelete
  3. Hang in there guys! Isn't it just awesome to have both of them home!!? We are still praying for all 4 of you and cannot wait until all of our lives settle down a little bit so we can see you again.

    ReplyDelete
  4. 不要把生命看得太嚴肅,反正我們不會活著離開。 ..................................................

    ReplyDelete
  5. So glad to hear that Max is well adjusted to life at home and that you had a good appt with pulmonary. We know how crazy this lifestyle is and how busy it is with all the appts and people in and out of your home. So sorry that Wes is still having issues with retching and now spitting up...so frustrating not having answers...have you been to the development clinic yet at Devos? They have been such a big help with any issue Jasper has faced, Jasper sees Dr. Dodge and she is just awesome! Keep hanging in there...glad you are getting a little extra sleep :) It won't be long and there will be birthdays to celebrate!! :)

    Tina Jacobsen

    ReplyDelete