So, after a full day of having Wes home, things are going really well. He is on a good schedule and has been sleeping very well. When I "fed" him last night at 2:00, he never even acknowledged that I was there. That is one benefit to the G-tube: unsnap the sleeper (I think that is what they are called), plug the little tube thingy in, and away you go. I will try and post a picture of the whole operation soon, I know visuals are very useful.
Max has had an okay week. No big changes really. His blood gases have been pretty good, but his oxygen needs continue to be erratic. Not as wild as they have been in weeks past, but anywhere from 40 - 60%. His demeanor continues to be very good and he has started to smile quite a bit (at least for his Dad!!). The only treatment for Max right now is time. He needs to grow. It is possible that his lungs can grow and develop to the point where the pulmonary hypertension will not be such an issue. It is our prayer that this will happen very quickly.
The boys are 6-months old today. Half a year of this crazy life. 6-months of driving to GR, parking in Parking Lot 7, riding in the elevator that says, "Welcome to the Spectrum Health Medical Center. when you exit the elevator, turn left and proceed to the end of the elevator lobby. The Fred and Lena Meijer Heart Center is on your left, and the Butterworth Hospital and the Helen DeVos Children's Hospital is to your right. Please see the attendants at any of the Information Desks for directions." But now Wes is home, and we cannot wait until his big brother can come home too.