Here is Wild Wild Wes enjoying a tubby. It takes about 10 minutes, but then he enjoys it. Kind of:
Max has had a fairly busy week. For those of you keeping track at home, Max's vent pressures are currently 26 over 11 versus 30 over 10. So up on the bottom pressure (PEEP), down on the top (PIP). His oxygen needs have stabilized a bit in the 40% range, mostly due to the vent change. Max did have a follow up heart echo on Friday too. That report showed essentially no change, which, if I was a "half-full" kind of guy, would see that as not getting any worse. The crappy part is that the cardiologist that read the echo said that he feels the pulmonary pressure is more like 66% of systemic, not 50% (refer to the last post for a description of the heart's pressures). This would indicate that Max's pulmonary hypertension is more severe than we thought. And there is nothing we can do about it. He is on the maximum dose of nitric oxide and the maximum dose of Viagra. Both of these drugs are designed to reduce the blood pressure in the lungs. So we wait. I do not know a lot about "severe" pulmonary hypertension, but I do know that phrases like "poor quality of life" and "shorter life expectancy" start popping up. The best thing for Max right now is to grow, and he has been doing that pretty well. He tipped the scales at 12 lbs 9 ounces last night. The down side is that his growth all seems to be happening in his cheeks and not his lungs. I was asking him earlier today if he thought the Broncos could beat the Browns this afternoon...he gave me an open mouth grin and they won 27-6. Coincidence? I will let you decide. I should add that it takes a tremendous amount of energy for him to smile, his cheeks are that big.
A happy camper:
Cuddling with Mom: