Max is holding up pretty well. He is still dealing with a lot of pain. He is off CPAP, in an uncuffed trach, no more ART line, and he also got rid of some of his IV's. He is making progress people!
We are still in the PICU. Max isn't quite out of the woods of being put back on the CPAP. It is something they can't do on a peds floor. He also needs to stool/pass gas. He has a very distended tummy from all the gas. It makes thing incredibly painful for the little guys. Lastly, he needs to be eating at a certain rate and digesting the food completely before the trip to peds.
Good news is that the liver seems to be taking! So far the ultrasounds and blood gases look really good. So our main goal is being archived. The rest will hopefully fall into place soon.
It has been difficult to comprehend the gift Max has received. It's so incredibly hard to process that someones child had to pass away on order for mine to live. I can never say thank you enough to that family. I just... there are NO words.