Wiersma Family Blog

A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....

Sunday, September 16, 2012

Sept. 16

Max is holding up pretty well. He is still dealing with a lot of pain. He is off CPAP, in an uncuffed trach, no more ART line, and he also got rid of some of his IV's. He is making progress people!
We are still in the PICU. Max isn't quite out of the woods of being put back on the CPAP. It is something they can't do on a peds floor. He also needs to stool/pass gas. He has a very distended tummy from all the gas. It makes thing incredibly painful for the little guys. Lastly, he needs to be eating at a certain rate and digesting the food completely before the trip to peds.
Good news is that the liver seems to be taking! So far the ultrasounds and blood gases look really good. So our main goal is being archived. The rest will hopefully fall into place soon.

It has been difficult to comprehend the gift Max has received. It's so incredibly hard to process that someones child had to pass away on order for mine to live. I can never say thank you enough to that family. I just... there are NO words.


  1. Thanks for the update. We continue to pray for Max's comfort and healing! It is incredible to think about the plan God must have for your miracle-man. He's been through so much in his short life! What a fighter and strong little buddy! Yes, impossible to comprehend that another child had to pass away in order for Max to have a new liver. Wow... what a courageous, incredible gift this grieving family gave! Saying a prayer for them as well. God's ways are certainly not our ways; his thoughts higher than ours. But we continue to trust His Sovereignty! And trust that He fills all those who are hurting with His peace that passes understanding!

  2. So encouraged by max's progress. Continuing to pray for your family and will add donor family needs to prayer list