May 29

Today was a rough day. Max had a restless night and today didn't get much better. He is incredibly achy from his neupogen shots, I think he is constipated, and the 2 together have given him a fever. I was not a lot of help today. I hadn't slept well at all and have felt "off" all day. Thankfully my fabulous Mother-in-law came over and hung out with the boys so I could take it easy.

Please pray that Max has a better night and that his fever goes away. That I get some sleep and feel refreshed for a new day. And that we all stay healthy in the coming days. Mark is going out of town this weekend and I know he is worried about leaving now.

May 26

Max came home today! He got chemo Friday and this morning. So far he is handling things better than ever. He walked around the house today, played, talked up a storm and laughed a ton. It was so fun to see him feeling so good!

I did have a little cry session yesterday. Mark noticed Max was loosing his eyelashes. I love his lashes. They were so full and long. I know it is a tiny petty thing but...I don't know, it was just another reminder that he is sick. My poor little guy.

May 24

Sorry for hte delay in blogging. I was without a computer for a while.

Max is doing superb!!! The last 10 days have been excellent. He is taking, laughing, playing...all the things he used to do. It has been so much fun to have him back!
Today we checked into the hemoc clinic for chemo weekend. So far his labs have looked great and to my knowledge we are going to be getting a room and starting chemo sometime tonight.
Max has been the hit of clinic today. Saying hi to all the people that walk by and saying the doctors names when they come in, it makes for smiles all around. I know I am biased but he is absolutely amazing.

May 8

All four of us are together again! Max and I came home yesterday around 3:00. He had a great night and so far a really good day. I wish I could say his brother is adjusting well. Wes is just plain naughty.
Max woke up today and walked around! He hasn't done that in over a month. He is talking a lot more to which is so nice to hear. All together so far so....GREAT!!!

May 7

We are still in the hospital but HOPE to go home today! Max started his second round of chemo late Friday night and Saturday. So far he is doing great!!! He is also off oxygen for the first time in in 7 weeks.
When we get home he will be on his numerous meds and we will also need to give him his nupagin shots (90% sure I spelled that wrong). The shots help his bone marrow make white blood cells. They tend to be what makes Max the most uncomfortable.  They targets the marrow they make all his bones extremely achy. It is hard for Max to describe when and where he doesn't feel good. Thankfully we have a couple different options to make him as comfortable as possible.
Gotta go. Docs are rounding.

May 2

We are still in PICU. Max is slowly but surely on the mend. We hope to move back down to a peds floor sometime this week yet. And, maybe if he continues to progress they might consider giving him his chemo this weekend.
I was able to get home for a couple hours tonight and see Wes. He is also feeling better.  He is up to his oh so spunky self.

One day at a time sweet Jesus, one day at time.