Wiersma Family Blog

WIERSMA FAMILY BLOG
A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....


Saturday, March 31, 2012

A few pics of this week.

Max getting ready for surgery Tuesday.

Gowned up, Elmo hat on, Milo (his duck) in his arms; He is ready to go.
Max took a walk around the hospital tonight (Saturday). He cried when we came back to the room.

Friday, March 30, 2012

Another journey has begun...

Today we received the the pathology results. They are exactly what we had expected. Max has cancer.
It feels weird to say, "My son has cancer." Wow, never in a million years did I EVER expect to say that.

He started chemo tonight. Tomorrow he has off and then another chemo cocktail Sunday. He will need to come back Mondays and go the the outpatient clinic, and every 3 weeks he will be back inpatient for a couple days.

Sorry for being so short. I am tired and anxious of what tonight is going to bring.

Wednesday, March 28, 2012

Max and Wes are 3!!!! -and- MAX 3.0

This is gonna be short and sweet...

Max and Wes and 3!!!

Our Miracle Men turned 3 yesterday. Still can't believe it! We had a fun impromptu party Monday night. The boys had a blast being the center of attention. Nothing like presents and balloons to make a kids day!


MAX 3.0

I am calling yesterday MAX 3.0 for Max Man. He turned 3 and had 3 procedures.
The surgeons first put in his broviac. It is the "port" he will use for chemo and labs. It is smaller than I thought and I think it will be easy to take care of. He also had a biopsy of his liver. The surgeon said the tumor looked "angry." My friend (Our amazing nurse Ashley tuned fantastic friend) pointed out, "what tumor isn't angry???" We are very glad we found it now. It hasn't spread to any other parts of the body. The third procedure was a specialized hearing test. This was done to get a baseline of his hearing. This was done because one of the chemos they would like to use affects hearing.

Chemo will start later this week. We are waiting for the pathology reports to come back to know the exact chemos and how often the cycles will be.
He has a good prognosis. The specialists used the word remission and cure several times. So we wait for the biopsy results and make a plan after that.

Tuesday, March 27, 2012

Tired.

Sorry I will update tomorrow. I am exhausted.
Surgery went well. We are just working on pain management. I will have a more detailed post tomorrow.

Kate