Here is one of my all time favorite pictures of Max. It was taken two nights ago when Nurse Ashley (one of our night nurses who has been taking care of Max for more than 6-months now) came on shift and was saying "hello."
Wes continues to do well at home. Two weeks without a hospital stay...way to go buddy!!! He has had a LOT of appointments, most of which have been at our house. The in-home nurse cam twice, occupational therapy came twice (they work mostly with improving motor skills and making sure he has good range of motion, etc.), the speech therapist came once (they work on bottle feeding) and he had a follow up appointment with the doctor who did his Nissin G-tube surgery. By in large he is doing well. We do a lot of exercises with him to strengthen his neck and make him aware of his feet, toys, face, etc., and that has been going pretty well. The follow up with the G-tube doc was okay. He thought Wes' site looked pretty good (it doesn't look very good to Kate and I...it has been red and oozy, but he is the doctor), but he was concerned that Wes has been retching a bit following his feedings. Since his G-tube procedure, he has been having some nasty sounding episodes where he gags and sounds like he is going to vomit. He cannot vomit because of the surgery, but there is obviously something awry. We have been keeping close tabs on him and have even backed down on how much we are feeding him, because if this does not resolve itself, we are moving to drip feedings. That is not the end of the world, just a move in the wrong direction and yet another piece of equipment we would need to haul around. Please pray with us that he is just having a little spell right now and soon will be feeling great and handling his feedings like a champ.
Here is a short video of Wes playing around while on his Boppy pillow. He really likes sucking on his hands, which I am told is a good thing.