Wiersma Family Blog

WIERSMA FAMILY BLOG
A glimpse into our lives as a family with micro-preemies. Our twins boys (Lovingly referred to as our Miracle Men) were born almost 16 weeks early.

Our journey continues when our son Max was diagnosed with cancer at the age of 3. This is his story....


Showing posts with label Day 25. Show all posts
Showing posts with label Day 25. Show all posts

Tuesday, April 21, 2009

Wrong direction

Today was not a good day.  Max is really not doing well right now.  He has been on 100% oxygen almost all day.  To counteract this, the doctors turned up his vent settings by quite a bit.  His pressure is currently set at 40, which is the highest it has ever been since day 1.  He had been in the high 20s to low 30s, but is just not responding right now.  He had another chest x-ray today which showed some slight improvement in his lungs, but that improvement is not apparent in his respiratory needs.  His blood pressure has been running high as well, so the doctors do not want to try steroid treatments as they tend to increase blood pressure even more.  They are trying something called "lasiks" (I think) which should help him pass additional fluids and hopefully flush out any fluids in his lungs.  They are also running another culture on the stuff they suck out of his ET tube.  His blood work does not suggest that he is fighting an infection, but they want to make sure they are not overlooking anything.  Wes has managed to backtrack on all of his improvements over the last few days, too.  His pressure on the vent was down to 27, but is now up to 32 again because his oxygen needs started to climb.  He is also scheduled to have PDA Ligation surgery on Thursday morning at 7:30.

God...where are You?  It feels like our prayers are falling on deaf ears.  You promised to hear our prayers, You promised never to leave or forsake us...why does it feel like You are gone?  Come quickly Lord, touch Max and Wes, heal their tiny bodies.  It seems like the stage is set for You to perform a miracle that is beyond medicine's ability to explain.  The doctors are confused, we are scared...maybe now is a good time?  We are holding fast, but our grip feels weak.  Send help Lord, tell the raging waters to be still.