Today Max and I came home from round 6 of chemo . He walked out of the hospital with his little hat on and sunglasses. What a rock star!
We met with Dr. Lopez last week. Sadly he gave us no new information, nor did he answer any of our questions. The only new development that came from that visit was Max upsizing his trach. A big time blow to us. We were thinking that it was going to come out. It knocked the wind out of me a little. The trach coming out has been dangled in front of us numerous times, we really thought it was going to happen. Now, not only is it NOT coming out, we have to go through the down sizing process all over again.
We are anxiously waiting for the call that Max is officially on the the transplant list. They tell us it will be any day, but that day hasn't come yet. The sooner the better. 6 rounds of chemo and no real end in sight is terrifying to think about.
As I have said before, I just want this thing out of my son. SOON.
Praying constantly for stength and support for family and for healing for Max. Wishing and praying the tide will change very soon and lots of good news will be coming your way.
ReplyDeleteLove you,
Marie
Your family is in my life group but I don't know much about u. I just read the latest post on your blog today. To explain what I'm going to say I've been checking bible references of 1000 gifts and have been retreading parts. What Ann refers to as eucharisteo. I like to think of as GRACE(Gods riches at christs expense) thankfulness and overwhelming joy. A lot of the time I say I am thankful but still underneath it all lies that fear of the future... So try to remember Gods view of life and time isn't like ours. Habakkuk 1:17b-2:3 is best in old living bible is my verse on that. Will be praying for the family: place on transplant list. Removal of trach Courage. Closeness to God and eachother. Using Gods Word to cast out fear. Anything else feel free to call text or email me. Cheryl Veldhuis
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