I may as well just stop the post there. But I will give a brief update on how things are going. Max has been doing pretty well. His oxygen is up a little bit, 40-45% usually. His secretions are also up a bit (the junk you an I would cough up, but Max can't because of the trach), which can be nothing, or it could be an indication that he is getting sick. We really hope that is not the case. They have made a couple of changes in the right direction on Max's ventilator, which could be why his oxygen is up a bit. The dos have talked about ordering a home vent for Max (the ventilator that we will take home with us), which is a really good sign. That might be the first tangible indication that Max will one day come and hang out here with the rest of us. We can't wait.
Wes is still being himself. The retching/reflux is maybe a little better since the last post, but certainly not gone. We have been feeding Wes over an hour (instead of a drip feed), and it does not seem like his reflux is any worse, so that is nice. He continues to keep his parents very busy, and we love it to pieces.
I hope you have all had a chance to check out Abi and Dave Lamar's blog. They have had a VERY up and down couple of days, but the key is that she is still pregnant. She is 24 weeks 5 days today, which is the same as Kate was the day our boys were born. We pray for many more days and weeks for the twinners.
Here are a few more pics:
Needless to say, Wes was not quite as happy about the face paint and warm fuzzy coat with adorable little bear ears on it.
How can you stand it? The boys are sooo adorable! Thanks for the great "bear" pictures!
ReplyDeleteBlessings, Lil K.
Yes, they are the cutest set of bear cubs ever!!!! What a total blast!! Thanks for sharing the pictures! Continued prayers for the cutest bear cubs ever!!!
ReplyDeleteTina Jacobsen
Give them both a big BEAR hug from a complete stranger for me. I just love seeing pictures of your family. I am in prayer for your family as well as the Lamar family, may God continue to bless you and keep you all in his hands. I am so proud to know each family and go through this journey with you all, it has made my faith stronger. Thank you. Becky S.
ReplyDeleteHey Mark & Kate,
ReplyDeleteI think you are right, those are the cutest bear cubs ever!! What fun! Thanks so much for the tour you gave us Saturday night. Thanks also for the support that you have given Dave and Abi. I continue to pray for you and your guys, for continued growth and development. Also, for the strength and energy that that to two of you need as you continue your walk with these two cubs! You are awesome parents! Larry
You have such an adorable family!! Max and Wes are such cuties!! I just want to squeeze them! I cracked up at "wild wild Wes"...you still have your sense of humor! We continue to pray for you all and appreciate the updates! Take care! Joy Koning and family
ReplyDeleteHey Kate, Mark and boys!
ReplyDeleteLoving the adorable bears!! We have a big stuffed bear at room, waiting for the twins, but your two bears are far more adorable.
Thanks again for touring us on Saturday...although, I enjoyed meeting your boys the most. You've a most precious family. Know that I'm praying for all of you...that God will give you the strength you need each day.
Your support to Abi and Dave is remarkable and so appreciated. Keep trusting as we do.
Love, Pam
definately the cutest pair of bear cubs I've ever seen! Thanks for the pictures and updates, you all continue to be in our thoughts and prayers.
ReplyDeleteEmily
LOVE The costumes! They are adorable. We continue to pray for all of you as well as for the Lamars.
ReplyDeleteCutest little bears EVER!!
ReplyDeleteAwww. I want to keep them! They can cuddle in my cave anytime!
ReplyDelete