That didn't take long

I intend for this to be a short post. At 11:00 last night Kate and I took Wes to the ER at Spectrum. His breathing was very labored, his oxygen needs had increased, he had not slept for about 24-hours (neither had Kate) and he was coughing a lot. They admitted us to the pediatrics unit (the NICU is a one-way exit, no babies come back through the front door as a patient) and that is were Wes remains. There are a number of theories flying around, but it is clear that his chronic lung disease has flared up for whatever reason, hence the labored breathing, coughing and increased O2 needs. We are not sure where things are heading right now, but it is pretty clear that he will be getting the same G-tube surgery that Max recently had where they wrap the top opening of the stomach to prevent reflux and install a port directly into his stomach. This is simply a much safer way to feed him for the near term to protect his airway/lungs from reflux. Wes was also "scoped by and ENT doctor who looked at his voice box because Wes makes very little noise. Wes does have a paralyzed vocal chord. We do not know if this is permanent or not, but the chord is not moving at all. This can also be an issue for his lungs because the vocal chords come together to protect the airway when swallowing, drinking, etc., so that is why the G-tube is almost a certainty. They just moved his feeding tube from his stomach into his intestines (Max had the same thing for a long time prior to his G-tube surgery), and they are giving him his second breathing treatment in 3-hours (he usually gets his treatments every 6-hours). His oxygen needs are currently more than 5-times what they were when we took him home.

I am going to end this post now. Kate and I are really hurting. We are mad, angry, scared, frustrated, wondering why we were allowed so little time to celebrate Wes being home before being thrown into the fire for the umpteenth time. 5-months of this crap is enough...don't you think, God?