Happy Thanksgiving

HAPPY THANKSGIVING!!!  This year we are extra thankful. Both our boys are home, fairly healthy, and making big strides in their development.
We have amazing family and friends who love us. A church that supports us in immeasurable ways. And a God that holds us tightly and leads us through our ups and downs.
We have come so far since last year! God has truly blessed our little family. 
Thank you for you thoughts and prayers. We are so touched.... I don't have words to express... THANK YOU.

God Bless you on this day. Have a fantastic Thanksgiving.

Love,
Mark, Kate, Max and Wes


 

Max is On a Roll!!!

Max's ween went great Friday. We can do half hour weens twice a day at home! Pulmonology would like us to take the first week easy. Max has been having some "off" days lately so they want to ease into the process.  If he does well this week we can do 1 hour weens the next week. We are ECSTATIC!!!!! The process has begun!!! 
It is so fun when we turn the vent off. Both boys look around to see how it got so quiet in the house. Max gets so proud of himself. He sits up super straight and giggles at himself. It is soooo cute. Wes crawls over to Max and stares at him. I think he is wondering where all of Max's tubes are.
It is such an amazing feeling. I am so proud of Max. He is absolutely amazing. We didn't expect to start this process already and he is handling it like a pro. We feel so....I can't find the right word. It is just wonderful!

Max's BIg Day

Friday (Nov. 5)Max is going to have an the opportunity to have a vent ween. They (Pulmonology) will turn his vent off for 1 hour and see how he does. If he handles it we will get to try it at home. And then, as the days go by we can slowly increase his time off the vent until he is off all day long (he will remain on the vent at night for a while yet). This is a HUGE step! We are thrilled that we are even talking about it. Please pray that it goes well. And, that he can continue to take steps towards being less dependent on his ventilator.
Thanks for your thought and prayers! We appreciate all of them. God has blessed us with these amazing boys. I am so excited to see what God has in store for them.