Unexpected Long Day

Today Max had his first appointment at the oncology clinic. His blood work looked great other than he was anemic. So he needed a blood transfusion. So, our 60 minute appointment turned into almost 7 hours. We sat in a room for 2 hours waiting for labs, then waited 2 hours for blood, then the transfusions lasted 2 hours. It was a LONG day. Max was a trooper. He sat on my lap the whole time. He'd fall asleep randomly and cuddle Milo (his stuffed duck). He is so stinkin cute!
Slowly the color is returning to his face and his eyes look a little brighter. Hopefully he will actually sleep tonight and not have anymore fevers.

Cancer stinks. That is all I have to say about that.

Max, chemo or sick????

The last couple day have been trying. I am having a hard time figuring out if Max isn't feeling good because of the chemo or if something else is going on. It is so difficult watching your child struggle and there is nothing you can do to comfort them. Thankfully we have an appointment tomorrow.  However I am a little scared that they will admit him. Which to Max is the worst thing in the whole world. This is already more difficult than I anticipated.
Please pray that Max can get a good night of sleep and no more fevers. 

Max is home!

Max came home from the hospital today! He is feeling pretty good. He is pretty cuddly but I can handle that.
He has had a couple rough nights but we are hoping that the severe nausea has subsided. He has really handled everything very well. He is such a trooper.

Thanks to our amazing church Max came home to a clean house! Not only a clean house but disinfected toys as well. Hopefully this will cut down on germs. We need a healthy Max Man.
Thanks Haven ladies!!!

A few pics of this week.

Max getting ready for surgery Tuesday.

Gowned up, Elmo hat on, Milo (his duck) in his arms; He is ready to go.

Max took a walk around the hospital tonight (Saturday). He cried when we came back to the room.

Another journey has begun...

Today we received the the pathology results. They are exactly what we had expected. Max has cancer.
It feels weird to say, "My son has cancer." Wow, never in a million years did I EVER expect to say that.

He started chemo tonight. Tomorrow he has off and then another chemo cocktail Sunday. He will need to come back Mondays and go the the outpatient clinic, and every 3 weeks he will be back inpatient for a couple days.

Sorry for being so short. I am tired and anxious of what tonight is going to bring.

Max and Wes are 3!!!! -and- MAX 3.0

This is gonna be short and sweet...

Max and Wes and 3!!!

Our Miracle Men turned 3 yesterday. Still can't believe it! We had a fun impromptu party Monday night. The boys had a blast being the center of attention. Nothing like presents and balloons to make a kids day!

MAX 3.0

I am calling yesterday MAX 3.0 for Max Man. He turned 3 and had 3 procedures.
The surgeons first put in his broviac. It is the "port" he will use for chemo and labs. It is smaller than I thought and I think it will be easy to take care of. He also had a biopsy of his liver. The surgeon said the tumor looked "angry." My friend (Our amazing nurse Ashley tuned fantastic friend) pointed out, "what tumor isn't angry???" We are very glad we found it now. It hasn't spread to any other parts of the body. The third procedure was a specialized hearing test. This was done to get a baseline of his hearing. This was done because one of the chemos they would like to use affects hearing.

Chemo will start later this week. We are waiting for the pathology reports to come back to know the exact chemos and how often the cycles will be.
He has a good prognosis. The specialists used the word remission and cure several times. So we wait for the biopsy results and make a plan after that.

Tired.

Sorry I will update tomorrow. I am exhausted.
Surgery went well. We are just working on pain management. I will have a more detailed post tomorrow.

Kate